Heart Kids NZ: A Family’s Lifeline

Paige had open-heart surgery at just 3 days old.

Paige has coarctation of the aorta - severe narrowing of the aorta. When she was born the blood supply would be cut off to the rest of her body, there is a duct in the heart that is open when they are in utero - which closes a couple of days after birth as their own heart takes over - her aorta was so narrow that meant she was not going to get any blood supply from neck down.

She had open-heart surgery at 3 days old to fix this. Five days later they had to open her up again because there was a complication and Paige got septicaemia. Her vocal cords, which are connected to the aorta, were also damaged by the surgery.

It has been an incredibly tough journey for the family, Paige’s older sister Blakely died at birth from a heart condition, and mum, Emma, said the family is grateful for the support they received from Heart Kids NZ.

“They were just constantly there making sure if we were okay and there was anything we needed. You just feel so alone, but then you've got all that support. And you just feel so well cared for and acknowledged.”

In hospital and unable to leave Paige, Heart Kids family support staff would visit and bring coffee. “You couldn't even go and get a meal, so it was amazing when they offered to sit with her so I could go and get some fresh air.”

Emma is a paediatric emergency nurse and says she knew a little bit about Heart Kids NZ, but didn't quite understand exactly how supportive they are.

“You know, they're just amazing. They're there for you emotionally, physically and financially. Families wouldn't be able to do it without them, there's just no way.

 
Kim Manunui

Hi, I’m Kim and I work with a great team to help individuals, as well as small and not so small businesses get their message, product and services to the world using digital media and creating wonderful websites that don’t cost the earth.

I was born in Canada, and grew up around Vancouver and the mountains of British Columbia. My love of pristine environments led me to New Zealand and eventually to the mountains, lakes and rivers of the central North Island which is home. My family’s heritage is here, and it’s from here that Korio traverses the planet.

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And I say ‘we’ because I work with an awesome group of talented people who I gather together as required to complete a project.  Whatever your business, not-for-profit or individual needs are we gather the best team to get the job done.

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If you have an audience and market to reach, we can make that happen. Creative design, words that work and smart behind the scenes stuff that cuts through the online noise. We’ll design your website and then build it. We’ll manage the content as well as all your hosting needs. We can handle your online advertising so you get noticed,
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